So it begins..or continues? Who knows anymore


The day is here. Today we travel to Houston for our first specialist visit with the neuro ophthalmologist. We also get to see a developmental pediatrician and pediatric neurologist.
Is it possible to be scared and excited at the same time?
I’m about 90/10. 
I wish we didn’t have to go through this…I wish everyday for a little more normal. 
I don’t even feel like the same person I used to be. I feel weaker, but I also kind of feel stronger. It’s a weird balance. 
I can’t imagine ever thinking of having any more children. This has been quite the experience. Not necessarily good, not necessarily bad. It just is. 
I get a Carter out of it all and for that I am grateful. But if he isn’t happy and hurting and can’t enjoy life, how do I deal with that? How do I deal with the fact that I gave him this life? 
The questions continue. The struggle continues. 

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