Our amazing weekend

Saturday was Carter’s first birthday party. It was everything I wanted it to be. It was everything I needed it to be. 

Carter was amazing, as always, and had such a fun time. He enjoyed being passed around and loved on. He enjoyed smashing his cake. He was so happy. 

And it made me so happy.

One of our most favorite gifts was an otteroo float from my parents. It gives Carter the chance to kick and work his muscles in the water when normally he doesn’t have the ability. We now are using it to bathe and is having a blast during bath time now. 

Not too much has changed lately physically. Still working on full head control and sitting. His tracking while sitting up is getting better and his glasses should be in this week. I’m so excited for him. 

We are starting to let him taste more foods and try juices. He aspirates on water, so we are trying something with taste like pedialyte. I hope he likes it. 

We are also getting real close to our genetics appointment. May 4. I’m terrified. I should be ready, but I’m not. I’m scared. I know it is what it is, but this is my son. My life. I need him. Always. I pray every night that all will be well. 

That we will get through this. That he will be okay. If you can, take a moment and pray with me. All of your prayers have gotten us to where we are now. The more we have, the better our outcome. 

“Life is a series of a thousand tiny miracles. Notice them.”